You can call me Chris or Flux, I'd like to share a story because it is something that needs awareness.
I'm a sufferer of an illness called POTS (Postural orthostatic tachycardia syndrome), its a form of Dysautonomia, I devloped it when I was only 15 years old when I barely started highschool, I've been through tough crap, not just illnesses but family issues, school and so on, I've lost quite a lot of everything in the past 5 years, and I didn't have the support that I needed unfortunately. It is a very serious illness that can ruin lives but not necessarily fatal, the symptoms can be awful and even make some people bedridden, but this isn't an illness that you can just rest off, we cannot be deconditoned (as in laying or sitting around all day) or else it won't improve and only worsen. The symptoms make it difficult to handle being up-right, our blood pressure and heart rate changes and we have to suffer of many symptoms including shortness of breath, blood pooling in limbs, extreme fatigue, exercise intolerance, lightheadedness/dizziness, and even fainting in some situations, it does need more awareness because people with it can't even get the help that they need, and most do give up due to the lack of support and motivation.
I've found great support finally thanks to a group called DYNA, they help young people like me that have Dysautonomia coniditons, They were able to get me an appointment with an amazing dysautonomia specialist, there is still hope for me to improve, it will take much effort, exercise, reconditioning, fixing sleep patterns, dietary changes, and just the right motivation. It isn't something that can just be fixed, its a very complicated chronic illness and I won't ever be cured or 100% better. I plan to get better and now there is actually a plan, it will take a lot of time but hopefully it will gradually improve and I can get my life back. I'm not going to let it beat me because I don't want to spend life being bedridden, that isn't a life and anyone will agree. I haven't seen too much of an improvement as of yet, but I'm not bedridden either and I can go out in public but its still painful for me.
If you want more information on the illness you can check it out at:
www.dinet.org http://en.wikipedia.org/wiki/Dysautonomia http://www.dynainc.org/ ------------------------------------------------------------------------------ Skype: NoFluxes LoL Username: NoFluxes Email: NoFluxes@gmail.com Aim: NoFluxes (not online that much though) ------------------------------------------------------------------------------ A couple hobbies of mine:
- I listen to a lot of metal music. (Favorite band is Epica) - Watch a lot of crime and drama tv shows. - Favorite sport is Baseball. - Practice Origami (although I'm no origami master)
Aperture Science Entertainment and Media Broadkast for Latest Enhancements
The Official Steam group of the Portal 2 Podkast, ASEMBLE. Hosted by Codename and Zbot. We record and release our episodes once every four weeks. We may decrease it to once every three weeks once we get enough content.
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